What is Uncontrolled Epilepsy?: Part II

When epilepsy is uncontrolled, it indicates the continued occurrence of an unacceptable quantity of seizures despite reasonable treatment. The amount of seizures deemed unacceptable is dependant on the nature of the seizures, the patient’s lifestyle and the consequences of such uncontrolled seizures.

So, what does uncontrolled epilepsy translate to in real life? What does uncontrolled epilepsy mean to those who are affected by it?

Continuing to experience seizures despite treatment, otherwise defined as intractable or refractory epilepsy, becomes a disability. Life becomes limited and circumscribed. (more…)

Q&A with Dr. Stephen Karceski

NEXT UP: Part II of “What Is Uncontrolled Epilepsy” by

Dr. Akila Venkataraman

 

 

 

The team at EFMNY would like to thank you for your questions! After each article we feature, we’ll post answers from our experts to the most frequently asked questions we receive.  Please note that these Q&A posts, like our articles, should not be taken as medical advice.  Each patient is unique.  For medical advice regarding your specific condition, please consult your doctor. For more information about epilepsy (a.k.a. seizure disorder), visit our website by clicking HERE.

 

Q&A with Dr. Stephen Karceski:

1. ”I have tried every medication; some seem to work for awhile but then my seizures come back. How common is this and why is it only for up to a year, more or less that the medication helps?”

You are not alone.  Many people experience an improvement in their seizures.  Then, after about 3 months (or more), the seizures gradually return to the previous frequency. No one knows why some people have this experience.  However, this is an active area of research – we may know much more about this in the near future.

2. ”I’m not a candidate for surgery and am not interested in the ketogenic diet. I am in a support group where a few persons have VNS but that hasn’t eliminated all their seizures, though it has helped. Is there a point when a doctor concludes seizure reduction is good enough?”   (more…)

What is Uncontrolled Epilepsy?: Part I

It seems simple: either a person’s seizures are controlled or they are not.  However, what does it mean to have controlled seizures?  To an Epilepsy Specialist, controlled seizures mean that the seizures have stopped.  Uncontrolled seizures are ones which continue, even though the person has tried one (or many) medications.  Surprisingly, many people come to their doctor, believing that their seizures are “under good control”.  To that person, “good control” might mean that the seizures are “much better than they used to be.”  However, even if the person is having one seizure per year, their seizures are uncontrolled. (more…)

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