Uncategorized | Epilepsy NYC - Epilepsy Foundation of Metropolitan New York

Update: Diazepam Rectal (Diastat)

The FDA announced that there is an ongoing shortage of both brand and generic forms of diazepam rectal gel. This medication is used for rescue therapy in people with epilepsy, including children. We strongly encourage you to speak with your healthcare provider about your/your child’s options for rescue therapy, since new FDA-approved rescue therapy products have entered the market.

Diastat (dye-ah-stat) is the brand name used in the United States and Canada for the seizure medicine with the generic name diazepam rectal gel. It is a seizure rescue medicine that is inserted into a person’s rectum to stop a cluster of repeated seizures. Similar products are available in the UK and elsewhere. 

Diazepam rectal gel is approved for use as a rescue medicine in people who have refractory seizures on stable doses of seizure medicines and need intermittent use of diazepam to control bouts of seizures. 

  • These terms may also refer to periods of increased seizures or seizure clusters
  • Seizure clusters are times when there is a change in the number, pattern or type of seizures. These are often different from a person’s usual seizures.
  • Diastat rectal gel is prescribed for short-term treatment and does not take the place of daily seizure medicine. 

For more information and FAQs, please CLICK HERE to follow this link to the Epilepsy Foundation.

NAYZILAM – Rescue Treatment in Schools

For indication on NAYZILAM and important safety information, please CLICK HERE.

Seizure Detection Using Wearable Devices: Current & Emerging Technologies [Webinar]

This webinar is presented by the Epilepsy Foundation of Metropolitan New York and sponsored by a non-commercial, unrestricted grant from LivaNova, Inc. [October 7, 2021]

Distinguished EFMNY PAB Member Patricia McGoldrick to Receive 2021 ACNN Award for NP Excellence

The Epilepsy Foundation of Metropolitan New York is proud to recognize its Professional Advisory Board Member, Patricia McGoldrick, NP MPA MSN, who is the recipient of the 2021 Association of Child Neurology Nurses (ACNN) Award for NP Excellence, to be presented in conjunction with the Child Neurology Society meeting at the end of this month. Patricia enjoys decades of notable professional achievement in Child Neurology. She is most deserving of this notable award.

Patricia McGoldrick, NP MPA MSN

Additionally, Toni Kavanagh, BSN, MSHA, MBA, CNRN is receiving the 2021 ACNN Claire Chee Award for Excellence in Child Neurology Nursing.

Toni Kavanagh, BSN, MSHA, MBA, CNRN

Patricia and Steven M. Wolf, MD received The Hero Award as the Distinguished Service Honorees at the 2018 EFMNY Annual Into the Light Dinner Gala. Toni will be receiving The Emma Rose Award for providing direct service to persons with epilepsy at the upcoming 2021 EFMNY Annual Into the Light Dinner Gala.

Please join the EFMNY Executive Director Elinor LaTouche, MPA, and the Directors and Professional Staff in saluting these two fine professionals.

For more information, please contact Chilton Harper, MPA at charper@efmny.org or 917-856-5717.

Beyond Thriving: Epilepsy – GMA on ABC with Robin Roberts on November 5, 2020

Celebrating November 2020 National Epilepsy Awareness Month, EFMNY PAB Chair Dr. Blanca Vazquez and EFMNY Staff Professional Logan Devlin participated in the GMA conversation on the topic of Beyond Thriving: Epilepsy.

VIDEO LINK: https://fb.watch/913GaiIFIA/

Infantile Spasms Awareness Week

Infantile Spasms (IS), also known as West Syndrome, is a rare form of age-specific epilepsy that usually presents itself in children within the first year of life. Early diagnosis and treatment of Infantile Spasms is of the utmost importance, and in many cases can ensure a more positive prognosis and a better quality of life, and significantly increases the chances of achieving reaching normal child development milestones.

Watch the videos below and check out our blog to hear a firsthand account of what it’s like to have a child with Infantile Spasms and to learn more about how Infantile Spasms (IS) are diagnosed, what signs to look for and what treatments are available.

In honor of Infantile Spasms Awareness Week, please share the videos below with friends and family in order to help us raise awareness about this rare form of epilepsy, and about the importance of early diagnosis and treatment.

« Previous Entries