“It was such a privilege to gather with New York & New Jersey families in NYC in support of the #CARERSAct legislation sponsored by Senator Kirsten Gillibrand, Senator Cory Booker, and Senator Rand Paul, which aims to reschedule cannabis to facilitate epilepsy research. The CARERS Act Bill will provide access to research, enabling families and their […]

What is the Compassionate Access and Research Expansion and Respect States (CARERS) Act to reschedule cannabis/ medical marijuana, and how does it relate to epilepsy? The Compassionate Access and Research Expansion and Respect States (CARERS) Act Medical Marijuana has been shown to alleviate symptoms of serious medical conditions including rare pediatric epileptic and seizure disorders, […]

Emely Gomez is our angel in heaven. She passed away from a seizure in 2012, age 23. Her identical twin sister Katherine Gomez, father Miguel Gomez and entire family and friends walked together in support of the Epilepsy Foundation to help spread awareness and hope to find a cure for Epilepsy. Emely was and will […]

Ten years ago, our life was changed in a blink of an eye. Justin was only six months old when he had his first seizure. My husband and I rushed him to the hospital to figure out what had happened to our infant son who was sleeping so peacefully only minutes before a seizure struck. […]

Having a child as we all know doesn’t come with a handbook. Our beautiful daughter, Ava Grace was born 32 weeks early weighing in just about 4 lbs. Healthy, for the most part, but failure to thrive. The next year or two was endless doctors for everything from nutrition to services for milestones. She eventually […]

Tayla Renee was born May 25, 2012; at 7lbs 11ozs and she instantly became the biggest piece of my heart. I remember thinking to myself, after the nurse handed her to me, that there is no way this beautiful little baby came from me. With straight long black hair, the most amazingly shaped eyes and […]