Profile: “Not another moment lost to seizures.” We are a community of people on the epilepsy spectrum. People whose lives have been impacted by seizures but who strive together to ensure that everyone with epilepsy is empowered to live full, active, healthy lives. Whether you have uncontrolled epilepsy or you are experiencing freedom from seizures. Whether you are a parent or loved one of a person with seizure disorder. You are part of this dynamic community. TOGETHER we will: RAISE epilepsy awareness RAISE the standard for quality of life for people with seizures RAISE funds for vital services, educational programs and research.
The Epilepsy Foundation of Metropolitan New York is a nonprofit 501(c)3 organization which provides empowerment programs and support services to individuals and families affected by seizure disorder. The Foundation also serves the greater metropolitan area with epilepsy awareness and seizure first aid training. Since 1967 thousands of people with epilepsy and their families have benefited from EFMNY’s comprehensive social and educational services.
Our services include: counseling; vocational services and job placement; prevocational and respite services; service coordination; information and referral services; socialization programs and educational presentations.
The Foundation also sponsors support groups, community educational presentations and other events throughout the year.
For more information, please visit our website at www.efmny.org or call 212-677-8553.
Infantile spasms is a potentially devastating early-onset epilepsy that affects infants, typically between three and nine months of age. Many cases of infantile spasms occur in children who are already have brain abnormalities, such as children with tuberous sclerosis, down syndrome, or brain injuries sustained as newborns. However, in about one third of affected infants, […]
My brother, Jimmy, was diagnosed with epilepsy at 6 months old. He was never able to get his seizures under control, and the longest he ever went seizure free was for 6 months after he had frontal lobe epilepsy surgery in 2011. However, 6 months after the surgery, his seizures returned and progressed to the […]
What is SUDEP? Sudden Unexpected Death in Epilepsy (SUDEP) is said to occur when a person with epilepsy dies unexpectedly and was previously in their usual state of health. The death is not known to be related to an accident or seizure emergency such as status epilepticus. When an autopsy is done, no other of […]
The Epilepsy Foundation of Metropolitan New York is excited to announce the first ever Epilepsy NYC Studio E Art Therapy for Teens! Made possible through the generous support of Lundbeck, Studio E offers a unique way for people with epilepsy to socialize with others and open up honestly about daily challenges in a trusting, creative […]
“It was such a privilege to gather with New York & New Jersey families in NYC in support of the #CARERSAct legislation sponsored by Senator Kirsten Gillibrand, Senator Cory Booker, and Senator Rand Paul, which aims to reschedule cannabis to facilitate epilepsy research. The CARERS Act Bill will provide access to research, enabling families and their […]
What is the Compassionate Access and Research Expansion and Respect States (CARERS) Act to reschedule cannabis/ medical marijuana, and how does it relate to epilepsy? The Compassionate Access and Research Expansion and Respect States (CARERS) Act Medical Marijuana has been shown to alleviate symptoms of serious medical conditions including rare pediatric epileptic and seizure disorders, […]