Profile: “Not another moment lost to seizures.” We are a community of people on the epilepsy spectrum. People whose lives have been impacted by seizures but who strive together to ensure that everyone with epilepsy is empowered to live full, active, healthy lives. Whether you have uncontrolled epilepsy or you are experiencing freedom from seizures. Whether you are a parent or loved one of a person with seizure disorder. You are part of this dynamic community. TOGETHER we will: RAISE epilepsy awareness RAISE the standard for quality of life for people with seizures RAISE funds for vital services, educational programs and research.
The Epilepsy Foundation of Metropolitan New York is a nonprofit 501(c)3 organization which provides empowerment programs and support services to individuals and families affected by seizure disorder. The Foundation also serves the greater metropolitan area with epilepsy awareness and seizure first aid training. Since 1967 thousands of people with epilepsy and their families have benefited from EFMNY’s comprehensive social and educational services.
Our services include: counseling; vocational services and job placement; prevocational and respite services; service coordination; information and referral services; socialization programs and educational presentations.
The Foundation also sponsors support groups, community educational presentations and other events throughout the year.
For more information, please visit our website at www.efmny.org or call 212-677-8553.
“It was such a privilege to gather with New York & New Jersey families in NYC in support of the #CARERSAct legislation sponsored by Senator Kirsten Gillibrand, Senator Cory Booker, and Senator Rand Paul, which aims to reschedule cannabis to facilitate epilepsy research. The CARERS Act Bill will provide access to research, enabling families and their […]
What is the Compassionate Access and Research Expansion and Respect States (CARERS) Act to reschedule cannabis/ medical marijuana, and how does it relate to epilepsy? The Compassionate Access and Research Expansion and Respect States (CARERS) Act Medical Marijuana has been shown to alleviate symptoms of serious medical conditions including rare pediatric epileptic and seizure disorders, […]
Emely Gomez is our angel in heaven. She passed away from a seizure in 2012, age 23. Her identical twin sister Katherine Gomez, father Miguel Gomez and entire family and friends walked together in support of the Epilepsy Foundation to help spread awareness and hope to find a cure for Epilepsy. Emely was and will […]
Ten years ago, our life was changed in a blink of an eye. Justin was only six months old when he had his first seizure. My husband and I rushed him to the hospital to figure out what had happened to our infant son who was sleeping so peacefully only minutes before a seizure struck. […]
Having a child as we all know doesn’t come with a handbook. Our beautiful daughter, Ava Grace was born 32 weeks early weighing in just about 4 lbs. Healthy, for the most part, but failure to thrive. The next year or two was endless doctors for everything from nutrition to services for milestones. She eventually […]
Tayla Renee was born May 25, 2012; at 7lbs 11ozs and she instantly became the biggest piece of my heart. I remember thinking to myself, after the nurse handed her to me, that there is no way this beautiful little baby came from me. With straight long black hair, the most amazingly shaped eyes and […]